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Title: Coping and wellbeing in families with a child with acquired brain injury compared with families in the community.
Epworth Authors: Analytis, Penelope
Ponsford, Jennie
Other Authors: Warren, Narelle
Crichton, Alison
Knight, Sarah
Keywords: Acquired Brain Injury
Parental Wellbeing
Family Functioning
Personal Wellbeing Index
Coping Scale for Adults Short Form
McMaster Family Assessment Device (General Functioning Subscale)
Monash-Epworth Rehabilitation Research Centre, Epworth HealthCare, Melbourne, Australia
Neurosciences Clinical Institute, Epworth HealthCare, Victoria, Australia
Issue Date: Dec-2021
Publisher: Taylor and Francis
Abstract: Purpose: Paediatric acquired brain injury (ABI) negatively impacts parental wellbeing and family functioning. Adaptive coping, that is behaviours promoting emotional wellbeing and addressing distressing problems, may support wellbeing and family functioning. This study compared wellbeing, coping, and family functioning between parents of a child with ABI and parents in the community, and examined coping as a predictor of wellbeing and family functioning. Methods: Forty parents of a child with ABI and 40 parents in the community participated in this cross-sectional survey using the Personal Wellbeing Index, Coping Scale for Adults Short Form, McMaster Family Assessment Device (General Functioning Subscale). Results: The ABI group had statistically significantly lower wellbeing, t(68.70) = -4.01, p < 0.001, lower adaptive coping, t(73.95) = -3.27, p = 0.002, and poorer family functioning, t(77) = 4.26, p < 0.001. Family composition (single-parent/couple), having a child with ABI, adaptive coping, and non-productive coping predicted 47.7% of the variance in wellbeing, F(5, 70) = 12.75, p < 0.001. Parental education, having a child with ABI, and non-productive coping predicted 35.9% of the variance in family functioning, F(5, 69) = 7.71, p < 0.001. Conclusions: Adaptive coping may contribute to better family outcomes in paediatric ABI.Implications for rehabilitationPaediatric ABI may have a significant impact on the child with ABI and the family, leading to poorer outcomes for some families.This study suggested that parents of a child with ABI use adaptive coping less than parents in the community but do not differ in the use of non-productive coping.Families need long-term targeted support to meet the challenges paediatric ABI presents and may benefit from interventions which actively seek to change parental coping strategies.
DOI: 10.1080/09638288.2021.200852
PubMed URL:
ISSN: 0963-8288
Journal Title: Disability and rehabilitation
Type: Journal Article
Affiliated Organisations: Turner Institute for Brain and Mental Health, Monash University, Melbourne, Australia.
School of Social Sciences, Faculty of Arts, Monash University, Melbourne, Australia.
Victorian Fetal Alcohol Service, Monash Children's Hospital, Clayton, Australia.
Department of Paediatrics, Monash University, Melbourne, Australia.
School of Psychology and Public Health, College of Science, Health and Engineering, La Trobe University, Melbourne, Australia.
Neurodisability and Rehabilitation, Murdoch Children's Research Institute, Parkville, Australia.
Department of Paediatrics, The University of Melbourne, Parkville, Australia.
Victorian Paediatric Rehabilitation Service and Children's Cancer Centre, Monash Children's Hospital, Clayton, Australia.
Victorian Paediatric Rehabilitation Service, The Royal Children's Hospital, Parkville, Australia.
Type of Clinical Study or Trial: Cross-Sectional Study
Appears in Collections:Rehabilitation

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