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Title: The PURPLE Pancreatic cancer Translational Registry: creating a digital platform to accelerate pancreatic cancer research.
Epworth Authors: Wong, Rachel
Knowles, Brett
Ananda, Sumitra
Jennens, Ross
Zimet, Allan
Croagh, Crough
Other Authors: Lee, Belinda
Thomson, Ben
Shapiro, Julia
Lipton, Lara
McLachlan, Sue-Ann
Nikfarjam, Mehrdad
Tebbutt, Niall
Cooray, Prasad
Harris, Marion
Burge, Matthew
Nagrial, Adnan
Goldstein, David
Zielinski, Rob
Day, Fiona
Yip, Desmond
Roy, Amitesh
Lomma, Christopher
Underhill, Craig
Clarke, Kate
Pattison, Sharon
EanChee, Cheng
Putoczki, Tracy
Grimmond, Sean
Hollande, Fred
Burgess, Tony
Gibbs, Peter
Keywords: PURPLE
Pancreatic Cancer Translational Registry
Digital Platform
Data Management
Data Sharing
Large-Scale Clinical Informatics
Translational Research
Pancreatic Ductal Adenocarcinoma
Cancer Services Clinical Institute, Epworth HealthCare, Victoria, Australia
Issue Date: Oct-2020
Conference Name: Epworth HealthCare Research Month 2020
Conference Location: Epworth Research Institute, Victoria, Australia
Abstract: The PURPLE Translational Registry is an international multisite prospective digital platform that collates “Real-World” data from public, private, urban and regional centres to inform our understanding of pancreatic ductal adenocarcinoma (PDAC) management. Established in 2016, this collaborative initiative spans 29 centres across Australia, New Zealand and Singapore. The PURPLE registry consolidates de-identified clinical and research data on a unique data-sharing platform to enable a diverse range of research activities. By combining clinical data with translational research, the PURPLE registry ensures that every patient’s experience informs research and improves care.
Type: Conference Poster
Affiliated Organisations: Walter & Eliza Hall Institute, VIC
The Royal Melbourne Hospital, VIC
University of Melbourne, VIC
Peter MacCallum Cancer Centre, VIC
Northern Health, VIC
Eastern Health, VIC
Monash University, VIC
Cabrini Health, Malvern, VIC
Western Health, VIC
Melbourne Private Hospital VIC
St Vincents Hospital, VIC
Austin Health, ONJCI, VIC
Warringal Private Hospital, VIC
Knox Private Hospital, VIC
Monash Medical Centre, VIC
Royal Brisbane & Womens’ Hospital, QLD
Westmead Hospital, NSW
Prince of Wales Hospital, NSW
Dubbo Base Hospital, NSW
Orange Hospital, NSW
Calvary Mater Hospital, NSW
Canberra and Calvary Hospitals, ACT
Flinders Hospital, SA
Fiona Stanley Hospital, WA
Border Medical Oncology, NSW
Wellington Hospital, New Zealand
Dunedin University Hospital, New Zealand
National University Hospital, Singapore
Appears in Collections:Research Month

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