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http://hdl.handle.net/11434/1912| Title: | The PURPLE Pancreatic cancer Translational Registry: creating a digital platform to accelerate pancreatic cancer research. |
| Epworth Authors: | Wong, Rachel Knowles, Brett Ananda, Sumitra Jennens, Ross Zimet, Allan Croagh, Crough |
| Other Authors: | Lee, Belinda Thomson, Ben Shapiro, Julia Lipton, Lara McLachlan, Sue-Ann Nikfarjam, Mehrdad Tebbutt, Niall Cooray, Prasad Harris, Marion Burge, Matthew Nagrial, Adnan Goldstein, David Zielinski, Rob Day, Fiona Yip, Desmond Roy, Amitesh Lomma, Christopher Underhill, Craig Clarke, Kate Pattison, Sharon EanChee, Cheng Putoczki, Tracy Grimmond, Sean Hollande, Fred Burgess, Tony Gibbs, Peter |
| Keywords: | PURPLE Pancreatic Cancer Translational Registry Digital Platform Data Management Data Sharing Collaboration Large-Scale Clinical Informatics Translational Research PDAC Pancreatic Ductal Adenocarcinoma Cancer Services Clinical Institute, Epworth HealthCare, Victoria, Australia |
| Issue Date: | Oct-2020 |
| Conference Name: | Epworth HealthCare Research Month 2020 |
| Conference Location: | Epworth Research Institute, Victoria, Australia |
| Abstract: | The PURPLE Translational Registry is an international multisite prospective digital platform that collates “Real-World” data from public, private, urban and regional centres to inform our understanding of pancreatic ductal adenocarcinoma (PDAC) management. Established in 2016, this collaborative initiative spans 29 centres across Australia, New Zealand and Singapore. The PURPLE registry consolidates de-identified clinical and research data on a unique data-sharing platform to enable a diverse range of research activities. By combining clinical data with translational research, the PURPLE registry ensures that every patient’s experience informs research and improves care. |
| URI: | http://hdl.handle.net/11434/1912 |
| Type: | Conference Poster |
| Affiliated Organisations: | Walter & Eliza Hall Institute, VIC The Royal Melbourne Hospital, VIC University of Melbourne, VIC Peter MacCallum Cancer Centre, VIC Northern Health, VIC Eastern Health, VIC Monash University, VIC Cabrini Health, Malvern, VIC Western Health, VIC Melbourne Private Hospital VIC St Vincents Hospital, VIC Austin Health, ONJCI, VIC Warringal Private Hospital, VIC Knox Private Hospital, VIC Monash Medical Centre, VIC Royal Brisbane & Womens’ Hospital, QLD Westmead Hospital, NSW Prince of Wales Hospital, NSW Dubbo Base Hospital, NSW Orange Hospital, NSW Calvary Mater Hospital, NSW Canberra and Calvary Hospitals, ACT Flinders Hospital, SA Fiona Stanley Hospital, WA Border Medical Oncology, NSW Wellington Hospital, New Zealand Dunedin University Hospital, New Zealand National University Hospital, Singapore |
| Appears in Collections: | Research Week |
Files in This Item:
| File | Description | Size | Format | |
|---|---|---|---|---|
| Lee, Belinda_NP2109_ Research 2020 PURPLE PDAC platform Final.pdf | 685.3 kB | Adobe PDF |  View/Open |
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